Wednesday 25 November 2015

Day 2 June 7th at RVI

Ok, so day 2 comes and goes?!  

I am not well, and the fuss continues but still a bit slowly!  The breakfast arrives at 7pm although at this time of year, fast approaching the longest day, it is light from around 330am.  Really.

So that wakes me as I sleep alongside an open window and the sun starts to shine down on me every morning.  It's a pain in the bum, but once you are woken by it that is it!  Every blooming day is the same!!  Hey ho, roll over, but it is really hard to sleep.

I doze, off and on, on and off...   It's all a bit dull but at least breakfast is quite early.

Today, Pam comes in, as she does every single day.  We never miss a slot and I owe her so much now.  And it is just beginning.   I have zero idea that I will be kept in as long as I am.  I really don't remember much being discussed today except a rough plan for the week ahead and the diagnosis of what "might" be wrong with me!!   It's all a bit of a game until tomorrow when the consultants come back to work!

So it's another wasted day really although the steroids have started to ease my head at last.

Tuesday 24 November 2015

June 6th Day 1 at RVI

So there I am.  Sitting in the quiet room with an enormous headache.  Waiting...   For a doctor.   Or anyone who cares!  I am sitting patiently, but my head feels ready to literally explode.  I have zero idea of what is happening to me and care even less.  It feels dreadful.

I wait, wait, wait for hours.  It seems ages until a doctor comes to see me, but eventually someone does come along.  Now I am not going to get this very correct as I have a massive bout of confusion, so will need to check with Pam.

I think, after waiting for 4-5 hours I saw someone who was interested.  I am like a random person in the hospital, just wanting someone to make me feel better.  It isn't the greatest feeling you can have but you just want someone to make you feel ok again.  Well it doesn't always work quite like that, and this time it really didn't.  I was suffering and they weren't 100% sure what was wrong with me.  They knew it wasn't more tumour (I think) but what could it be?  Well, they needed to run some tests to be more sure.  However, on a Saturday AM there aren't as many doctors around and it's all a bit of a wait around.  A few nurses did come to see me, but didn't make much progress.  Eventually, later in the PM  a weekend registrar came to take a look and he did a few procedures, including taking a sample from the swelling (I think).  He sent it for analysis and said he'd come back and let me know what it showed.  Finally, some progress although not loads!!  I think he put me on steroids too but will need to check that too!!

Back at RVI

So I went in to the RVI in May for a routine (if such a thing exists) operation.  I think it was the 11th that I was booked for.  All went really well and I was in and out within 2 days.  Yes really amazingly just 2 days.  Wow, all good.  I remember as my sister Rebecca came to visit me and all seemed well.  I had been in from Tuesday til Thursday I think.  Becksie came to stay the following weekend and I was tip top.  It was Eurovision weekend and we had a party on the Saturday evening to celebrate.  Great fun, eating tea on the floor!  What a good laugh.  And all seemed well for a couple of weeks, but sadly things did take a downhill dive!

I had been getting a headache and been calling the hospital asking about options.  They eventually came back to say that the removal had been radio-narcrossis, which needed removing, but wasn't dangerous.  The best bit of news was that there was no need for any follow up after the operation.  So why did I have a bad head?  I pushed hard but was told not to worry, so I went out to a gig at the pub up the hill.  Well you do when they say don't worry don't you?  Well I did anyway!!  All seemed good and we'd been to see a band that I know, gave them a hand with the load out and ot dropped at home at 1.30am!   Like I said, all seemed good and I went to bed around 1.30am but was rudely awoken at 2.30am with a massive headache and a huge swelling on my head!  Wow that was sore and had come from NOWHERE!  I had to wake the wife and tell her.  She was pretty distressed and we decided to wait until first light to call the hospital ward.  They were very kind and asked me to come in ASAP, which we did.  And 3.5 weeks later I am still there!!  So what happened?